• Making room for life and death at the same time – a qualitative study of health and social care professionals’ understanding and use of the concept of paediatric palliative care 

      Winger, Anette; Albertini Früh, Elena; Holmen, Heidi; Kvarme, Lisbeth Gravdal; Lee, Anja; Bruun Lorentsen, Vibeke; Misvær, Nina; Riiser, Kirsti; Steindal, Simen Alexander (Peer reviewed; Journal article, 2022)
      Background: The concept of pediatric palliative care (PPC) is applied diferently within the healthcare system and among healthcare professionals (HCPs). To our knowledge, no studies have investigated how multidisciplinary ...
    • Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs—a scoping review 

      Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Riiser, Kirsti; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Mariussen, Kari; Lee, Anja (Peer reviewed; Journal article, 2023)
      Background: Measuring outcomes facilitates evaluation of palliative services for children, adolescents, and young adults (CAYAs) with life-limiting and/or life-threatening (LL/LT) conditions. Implementation of patient-reported, ...
    • Patient-reported outcome measures in pediatric palliative care—a protocol for a scoping review 

      Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Riiser, Kirsti; Mariussen, Kari; Lee, Anja (Peer reviewed; Journal article, 2021)
      Background: In pediatric palliative care (PPC), there is a need to involve the child’s voice in situations regarding their symptoms and care needs. Patient-reported outcome measures (PROMs) can be tools to systematically ...
    • Stories of paediatric palliative care: a qualitative study exploring health care professionals’ understanding of the concept 

      Riiser, Kirsti; Holmen, Heidi; Winger, Anette; Steindal, Simen Alexander; Castor, Charlotte; Kvarme, Lisbeth Gravdal; Lee, Anja; Bruun Lorentsen, Vibeke; Misvær, Nina; Albertini Früh, Elena (Peer reviewed; Journal article, 2022)
      Background: By sharing patient stories, health care professionals (HCPs) may communicate their attitudes, values and beliefs about caring and treatment. Previous qualitative research has shown that HCPs usually associate ...
    • A systematic review of quality of life research in medicine and health sciences 

      Haraldstad, Kristin; Wahl, Astrid Klopstad; Andenæs, Randi; Andersen, John Roger; Andersen, Marit Helen; Beisland, Elisabeth Grov; Borge, Christine Råheim; Engebretsen, Eivind; Eisemann, Martin; Halvorsrud, Liv Torill; Hanssen, Tove Aminda; Haugstvedt, Anne; Haugland, Trude; Johansen, Venke A; Larsen, Marie Hamilton; Løvereide, Lise; Løyland, Borghild; Kvarme, Lisbeth Gravdal; Moons, P; Norekvål, Tone M.; Ribu, Lis; Rohde, Gudrun E.; Urstad, Kristin Hjorthaug; Helseth, Sølvi (Peer reviewed; Journal article, 2019)
      Purpose : Quality of life (QOL) is an important concept in the feld of health and medicine. QOL is a complex concept that is interpreted and defned diferently within and between disciplines, including the felds of health ...